Sunday, November 6, 2011

Feeding advice for a 2 year old with cleft lip and palate?

My youngest son was born with cleft lip and palate and has had a feeding tube since he was 3 months old due to failure to thrive and just not being able to eat enough. He has had 4 operation now, 2 of them were repair operations for his lip and palate and the other 2 were for his g-tube. About 3 months after the last surgery (december 2009) we were able to wean him off of the tube feeding as he started to eat enough by mouth (YAY!) But for about the last 4 or 5 months he is back to not wanting to eat much during the day. We are trying not to go back to tube feeds unless we absolutely have to. We have gone back to basics, mac and cheese and mashed tater, and he just munches a few times during the day but will also not drink the formula and pediasure from his cup. I have asked his doctors about this and the OT and all of the others on his medical team but they just say go back to tube feeds. Tube feeds all the time don't teach him how to eat though. I hope someone understands where i am coming from on this !! If anyone who has gone through this or something kind of the same any suggestions would be SSSSOOOOO great. If you need anymore details of have questions, feel free to ask. Thanks in advance :)

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